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3.4: Confidentiality and the Carer

centred_carePrivacy and confidentiality

Privacy and confidentiality of information is a contentious issue and can have a major impact on the patient, carer and psychiatrist relationship. A balance is required between the patient’s rights to privacy and the information required by the carer to fully support the needs of the patient.(1) Dealing with the question of confidentiality openly and sensitively, offers the psychiatrist an opportunity for a trusting and mutually beneficial relationship with their patients’ carers.(2)

A review of the literature offers fear of litigation as the major reason why clinicians fail to disclose information to carers.(3) Section 120A(3) of the Victorian Mental Health Act 1986 prohibits any staff member of a psychiatric service from providing information about people who are, or have been, in receipt of psychiatric services. However, section 120A(3) gives certain exemptions to these strict requirements of confidentiality. These include the giving of information:

  • with the prior consent of the person
  • in general terms
  • to a guardian, family member or primary carer if the information is reasonably required for the ongoing care of the person, and the guardian, family member or primary carer will be actively involved in providing that care
  • in connection with the further treatment of the person.(1)

The New Zealand Mental Health (Compulsory Assessment and Treatment) Act 1992 requires mandatory consultation with the family/whānau of a person detained, under section 7A of the Act, unless the conclusions from the consultation indicate it is not in the person’s best interest. The New Zealand Ministry of Health give direction on working closely with families, sharing information, planning, decision-making, and providing support and education where needed.(4)

videoPractical approaches to privacy and confidentiality(5)

 

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Barriers and solutions

Barriers to providing information

Solutions to barriers

The law does not allow the disclosure of confidential information about patients

 

The following information can be communicated: symptoms, behavioural difficulties and how to manage them, pharmacological, psychological and social treatments.(5)

 

Gain consent from the patient and discuss the level of information that can be disclosed. Record consent in the patient’s notes.

The patient does not give consent to the disclosure of information to the carer

Discuss confidentiality issues with the patient at an early stage. Preferably this should be when a patient is not acutely ill. Timing is very important. Keep trying until an advanced directive is complete.(6)

 

Explain the importance of sharing information with a carer, highlighting the benefits to the patient. The video extract below provides an example.

 

Gain an advanced directive for times when the patient is unwell and not able to make decisions.(6)

The patient changes his or her mind on providing consent to the carer

Always record confidentiality issues in a prominent position in the patient’s notes. This allows continuity of care.(6)

 

Be aware of changes within the carer and family relationship.(6)

Patients do not want to share information with their carers

Some patients feel that the carer can be over-bearing. A collaborative approach to self-management will identify responsibility of actions.

A lack of confidence by the psychiatrist to disclose information

Follow the three steps as suggested in the Confidentiality DVD: respect confidential information, treat the patient and avoid harm.

Concerns over losing the patient’s trust

Aim to gain consent, discuss the less personal information that could be disclosed, such as symptoms etc, and explain the benefits.

 

Discuss the confidentiality policy on sharing information for each patient in the multidisciplinary team.


In situations where the patient fails to appreciate that he/she has a mental illness, a useful book which describes how to manage these circumstances is I am not sick. I don’t need help! by Xavier Amador. Amador is a clinical psychologist. His brother, who suffers from severe schizophrenia, had no insight into his condition, and Amador documents his methods of ‘Listening, Empathising, Agreeing and Partnering (LEAP)’, which enabled his brother to develop a degree of self-management.(7)

 

videoLegal advice on confidentiality(5)

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In this video vignette, David Leggatt, a lawyer and partner with Phillips Fox, offers legal advice to psychiatrists on the topic of confidentiality.

resourcesAdditional resources

ReferencesReferences

  1. Leggatt M. Working Together. A short, practical guide for consumers, family carers and mental health professionals to work together in collaboration and partnership. Southern Mental Health Association. 2006.
  2. Leggatt M, Furlong M. Reconciling the patient’s right to confidentiality and the family’s need to know. Australian New Zealand Journal of Psychiatry 1996;30(5):614–22.
  3. Harvey C, Ning L. Callander R, Leggatt M, Stephens J, Gooding P, Woodhouse S. Privacy and confidentiality issues paper. National Mental Health Consumer and Carer Forum. September 2009.
  4. National Mental Health Consumer and Carer Forum. Privacy and Confidentiality Issues Paper 2009.
  5. Clinicians, Carers and Confidentiality DVD. Reach Out Southern Mental Health.
  6. Carers and confidentiality in mental health. Issues involved in information sharing. Royal College of Psychiatrists. August 2004.
  7. Amador X. I am not sick. I do not need help! How to help someone with a mental illness accept treatment. Vida Press, New York, 2007.
Continue to Module 3.5: The Self-management Care Plan Interview

Project support

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This RANZCP Chronic Condition Self-management project is supported by funding from the Australian Better Health Initiative: A joint Australian, State and Territory government initiative.

RANZCP

ImageAbout RANZCP

The Royal Australian and New Zealand College of Psychiatrists (RANZCP) is the principal organisation representing the medical specialty of psychiatry in Australia and New Zealand.

The College is responsible for training, examining and awarding the Fellowship of the College qualification to medical practitioners.