3.4: Confidentiality and the Carer
Privacy and confidentiality
Privacy and confidentiality of information is a contentious issue and can have a major impact on the patient, carer and psychiatrist relationship. A balance is required between the patient’s rights to privacy and the information required by the carer to fully support the needs of the patient.(1) Dealing with the question of confidentiality openly and sensitively, offers the psychiatrist an opportunity for a trusting and mutually beneficial relationship with their patients’ carers.(2)
A review of the literature offers fear of litigation as the major reason why clinicians fail to disclose information to carers.(3) Section 120A(3) of the Victorian Mental Health Act 1986 prohibits any staff member of a psychiatric service from providing information about people who are, or have been, in receipt of psychiatric services. However, section 120A(3) gives certain exemptions to these strict requirements of confidentiality. These include the giving of information:
- with the prior consent of the person
- in general terms
- to a guardian, family member or primary carer if the information is reasonably required for the ongoing care of the person, and the guardian, family member or primary carer will be actively involved in providing that care
- in connection with the further treatment of the person.(1)
The New Zealand Mental Health (Compulsory Assessment and Treatment) Act 1992 requires mandatory consultation with the family/whānau of a person detained, under section 7A of the Act, unless the conclusions from the consultation indicate it is not in the person’s best interest. The New Zealand Ministry of Health give direction on working closely with families, sharing information, planning, decision-making, and providing support and education where needed.(4)
Practical approaches to privacy and confidentiality(5)
The following short video extract from Associate Professor Amgad Tanaghow, Chief Psychiatrist, Mental Health Branch, Department of Human Services, provides the psychiatrist with some practical methods to tackle privacy and confidentiality.
A young person told the staff repeatedly that ‘I don’t want to talk to anyone of my family’. But every second day he would take an overdose and be brought to casualty and say it was impulse and send him back home and who was at home, his mother. He calls his mother, he lives on his own, to come and see what has happened to him. And that happened for about two weeks. When I was reviewing the problem I said, let me talk to him and I said ‘I have to talk to your mother’ and he said ‘you can’t talk to my mother’. I said, ‘why not?’ He said ‘I ban you from talking to my mother’ but I said ‘you go to her every time after an overdose and ask her to come and help you so why are you doing that and I will not be able to provide you with adequate help. And there is an illness that is obviously not managed properly because you repeatedly do that every day for the past two weeks. So I will have to talk to your mother, admit you to hospital’, and what I did was talk to his mother in front of him. I talk about the issues and the problems so the confidential material he doesn’t want to disclose is kept confidential but it is about the whole issue, why is he doing that and how can this be managed. The experience normally is that the person himself following the treatment thanks you for what you did because you managed to offer a much better help and resolution in the relationship and things move on in their life.
Barriers and solutions
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Barriers to providing information |
Solutions to barriers |
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The law does not allow the disclosure of confidential information about patients
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The following information can be communicated: symptoms, behavioural difficulties and how to manage them, pharmacological, psychological and social treatments.(5) |
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Gain consent from the patient and discuss the level of information that can be disclosed. Record consent in the patient’s notes. |
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The patient does not give consent to the disclosure of information to the carer |
Discuss confidentiality issues with the patient at an early stage. Preferably this should be when a patient is not acutely ill. Timing is very important. Keep trying until an advanced directive is complete.(6) |
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Explain the importance of sharing information with a carer, highlighting the benefits to the patient. The video extract below provides an example. |
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Gain an advanced directive for times when the patient is unwell and not able to make decisions.(6) |
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The patient changes his or her mind on providing consent to the carer |
Always record confidentiality issues in a prominent position in the patient’s notes. This allows continuity of care.(6) |
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Be aware of changes within the carer and family relationship.(6) |
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Patients do not want to share information with their carers |
Some patients feel that the carer can be over-bearing. A collaborative approach to self-management will identify responsibility of actions. |
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A lack of confidence by the psychiatrist to disclose information |
Follow the three steps as suggested in the Confidentiality DVD: respect confidential information, treat the patient and avoid harm. |
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Concerns over losing the patient’s trust |
Aim to gain consent, discuss the less personal information that could be disclosed, such as symptoms etc, and explain the benefits. |
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Discuss the confidentiality policy on sharing information for each patient in the multidisciplinary team. |
In situations where the patient fails to appreciate that he/she has a mental illness, a useful book which describes how to manage these circumstances is I am not sick. I don’t need help! by Xavier Amador. Amador is a clinical psychologist. His brother, who suffers from severe schizophrenia, had no insight into his condition, and Amador documents his methods of ‘Listening, Empathising, Agreeing and Partnering (LEAP)’, which enabled his brother to develop a degree of self-management.(7)
Legal advice on confidentiality(5)
In this video vignette, David Leggatt, a lawyer and partner with Phillips Fox, offers legal advice to psychiatrists on the topic of confidentiality.
The thrust of what I am going to say is that there is no legal impediment whatsoever to the kind of information that Katherine and Trish were saying they wanted access to being provided by a clinician or being provided by the system, there is just absolutely none. What really is in place is a perception of what the law is or a fear of what the law is and just a lack of confidence really in a lot of situations to actually come out and exercise your own professional judgement. I will give you the three step guide to what this whole issue about privacy and confidentiality is and won’t talk about any sections or any law like that. If you follow these three things you will never ever have a problem with the disclosure of any confidential information.
The first one is respect confidential information. Everyone knows what’s confidential, you just know it intrinsically, treat it with respect. The second one to a clinician or professional, treat the patient. Use the information to treat the patient. The third one is avoid harm, which is the most important. That can be avoid harm to the patient, avoid harm to the carers, avoid harm to the community. Now there is always this tension between confidential information that is going to be provided by a person about their illness and that tension is going to be with the need to disclose that. It is really in practice not that difficult but occasionally it is unbelievably difficult. And I get presented at work with situations sometimes that I say to the doctor you will breach the law whatever decision you make but you have just got to do the right thing. What professionals need to be told and what is actually the law is that a reasoned use of confidential information will always be supported, provided it is reasoned.
I will give you an example then of what is unacceptable breach of confidential information and what is a reasoned use of confidential information. An unacceptable breach of confidential information is a case I had recently where a man went to see a psychologist as part of marriage therapy sessions. He had three marriage therapy sessions with the psychologist and then unfortunately the marriage broke down and ended up in a very bitter access dispute. Now he was absolutely furious when his wife at the access hearing produced a report from the psychologist that he had met with and that, as he described, had ‘spilled his guts to’ over the three sessions and that psychologist had provided a report solely to his wife that she was now using against him in the access dispute. Now that is just a violation that is not treating confidential information with respect. That is a misuse.
Go on to the reasoned side. It is a doctor who is told by someone he is treating that the person has some extremely florid and dangerous thoughts about his mother. Now I won’t venture as to if that is a common or uncommon experience but I have heard it more than once. And the issue is, is that disclosed to the mother and is that disclosed to the family? I said ‘Is it going to be useful in the treatment and is it going to avoid harm?’ My view, yes it is going to be useful in the treatment because the family actually knows what the problem is and the delusional patterns and that sort of thing that they can actually use to be more supportive but more importantly is it going to avoid harm and it probably is. And so the family was informed. Now that is a reasoned disclosure of information and I will now quote a section, section 120A of the Mental Health Act ‘permits the disclosure of information without the consent of a patient if it is reasonably necessary in the treatment of that patient’. Now the courts are not so arrogant as to actually look behind what a psychiatrist or mental health professional is reasonably coming up (against) in a very difficult pressure cooker situation and so it is perfectly legal. There is no law that certainly prevents the provision of that information.
So what is the key to it? The first one is that the whole thrust of all of these acts and the whole thrust of the consumer driven law now is for there to just be disclosure up front. When you are engaging a service just understanding what information is going to be used by them for what purpose. It does not have to be a 10-page document covering every conceivable angle, its just got to be if you give your information, we can share it with other services, we can share it with other clinicians, we can share it with your family but at all times we will treat your confidential information with respect and only use it when reasonably necessary to do so. Now someone understands that when engaging a service, there’s not going to be that sense of violation about any perceived misuse of confidential information. And always you just have to keep coming back to it, where there is a professional who sits down and thinks, what is the best thing to do in this situation for this patient, what is the best thing to do in this situation for the family, and the law is not about stopping that from happening.
Additional resources
- Medical Council of New Zealand. Confidentiality and public safety http://www.mcnz.org.nz/portals/0/Guidance/Confidentiality%20&%20Public%20Safety.pdf
- Guidelines to the Mental Health (Compulsory Assessment and Treatment) Act 1992 Section 7A: requirement to consult with family/whānau http://www.moh.govt.nz/moh.nsf/pagesmh/4584/$File/AmendedSection7a.pdf
References
- Leggatt M. Working Together. A short, practical guide for consumers, family carers and mental health professionals to work together in collaboration and partnership. Southern Mental Health Association. 2006.
- Leggatt M, Furlong M. Reconciling the patient’s right to confidentiality and the family’s need to know. Australian New Zealand Journal of Psychiatry 1996;30(5):614–22.
- Harvey C, Ning L. Callander R, Leggatt M, Stephens J, Gooding P, Woodhouse S. Privacy and confidentiality issues paper. National Mental Health Consumer and Carer Forum. September 2009.
- National Mental Health Consumer and Carer Forum. Privacy and Confidentiality Issues Paper 2009.
- Clinicians, Carers and Confidentiality DVD. Reach Out Southern Mental Health.
- Carers and confidentiality in mental health. Issues involved in information sharing. Royal College of Psychiatrists. August 2004.
- Amador X. I am not sick. I do not need help! How to help someone with a mental illness accept treatment. Vida Press, New York, 2007.





